Avishi has been diagnosed with MPS Type VI & she can’t receive treatment for this in India. Here’s how your CSR funding can help her parents take her to Netherlands.
Project by: Abhishek Jain
Location: Jaipur, Rajasthan
Funding Required: INR 50 lacs
Category: Eligible CSR activity as per Companies Act 2013, Schedule VII
(i) …promoting preventive health care, …
Here’s an appeal for Avishi’s parents.
Our daughter, Avishi has been diagnosed with MPS Type VI (Mucopolysaccharidosis Type 6) – a very rare, debilitating & life-threatening genetic disorder. If left untreated, expected life span would be age 20 to 25 years with deteriorating body condition every year.
Unfortunately she cannot receive treatment for this rare disease in India, as there are no expert medical centers with experience, cutting-edge technology and research for MPS. We need to quickly move her to UMC Utrecht (Netherlands) for required treatment. The hospital cost is (1,94,000 Euros or Rs. 1.47 crores). Add another Rs. 48 lakhs towards living expenses for 1-year at Netherlands. Total cost of treatment is Rs. 1.94 crores approximately.
We have tried knocking many doors with government authorities in India, met health minister of Rajasthan many times, newspaper & media coverage etc. A Government Committee was also formed by Health Minister of Rajasthan to look into the matter, but to no avail.
Your donations will go towards easing the burden of Avishi’s treatment, medical care and incidental costs associated with a long stay away from home over the next several months. We need to act very quickly as the count goes in days.
This campaign is being run in collaboration with
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